what to say, if you are assigned a psychiatric hospital after years of physical multi-systemic illness with the main feature of inflammation of the central nervous system and dysfunction of the immune system?
You've been in bed with moderate to severe high blood pressure for five days, while the psychiatric hospital of
Her vision tells of founding an interdisciplinary center for alternative and conventional medical topics at the age of fifty…
What we're talking about here, in myalgic encephalomyelitis since 80 years to do: Inflammation of the central nervous system and spinal cord, which makes it u.a. leads to countless crazy dysautonomia and cardiac problems, who would be treated, however, often cannot be controlled with conventional medication….
I'm sad, that I have no chance, my neurally mediated blood pressure (Hyperadrenergic POTS) to treat, because
Doctors do not want to read the international specialist documents. I'm down, that I have no chance, to help myself and I am quite likely to die from cardiac death, if I don't anticipate it.
I can't tell, how desperate and lonely you feel, to suffer from an illness, known to the WHO, but in this country only exists as fatigue and from hearsay.
I wrote about this several years ago; that this medical, political and socio-political abandonment is tantamount to a severe trauma. a trauma, similar to being abandoned as a child. one is with 250 symptoms, which threaten the body and originate in the various organ systems and all in the brain, completely alone.
The chronic nature of the disease also leads to complete isolation, when the disease arose, before you could build up a social and professional network or before you fell ill, after you already have a partner and family.
Then you get, like me, sometime after years a psychiatric hospital, because this is paid for by basic insurance, as well as the associated medicines: Valium, Antidepressants, Psychotic.
About ten days ago I was desperate, because I didn't have a job, at this moment of the rarest symptom-free phase, I wanted to bang my head through the wall, I wanted: a job, a man (win for me), explore new pubs and hiking trails, cook new menus, leave by train, Help Ildy in the Brocki ….. and so on ……………………………… I was at that moment of ten days, induced by cortisone (against post covid) come dangerously close to health …..
how positive can a pessimist with terminal illness be, if he every time, when he's fine again, believes, let it be forever???!!!
Isn't this just human stupidity? (so from me!!? Because I am an abysmal pessimist)
… then the lid is put on or you are back in the torture chamber of the Holy Virgin overnight, representing a form of eternity, every time. Everything is on fire, Epidermis to below the hair roots, the fire of inflammation shines up the brainstem, on which one lies continuously, to clutch… the brain is pounding, the muscles lack coordination, they are so weak …you can't think …only the fingertips are ok.
That activity in myalgic encephalomyelitis causes damage to the brain, I know. A few years ago, a researcher at Stanford University used modern imaging techniques, evt. even just MRI, shown, how the brain areas of a walker with ME become inflamed or remain inflamed after the walk. (for how long I don't know)
The consequences of the activity, the damages, can sometimes only show up a few days later, which is often the case for me.
The mechanism of this delay is unclear to me, I would like to understand him. Maybe then I could be prophylactic on the activities, that mean my life, waive.
This disease is unworthy of Hades.
Thanatos would never play with a human like that on his own.
By giving him thousands of deaths throughout his life, but not a real one.
https://meassochttps://www.youtube.com/watch?v=rxdzaWD5wfU
Jarred Younger examines neuroinflammation in the Brain of ME-Patients